Stakeholders, advocates, and government representatives has called for inclusive health and social welfare policies as the Osun State chapter of the Albinism Association of Nigeria marked the 2025 International Albinism Awareness Day.
The event, held at the Nigerian Medical Association (NMA) House, Osogbo, has the theme: “Demanding Our Right: Protect Our Skin, Preserve Our Lives.”
The event spotlighted the urgent need for comprehensive healthcare, social inclusion, and policy reform to support persons with albinism (PWAs), who remain disproportionately affected by preventable health challenges such as skin cancer and also face persistent societal discrimination.
Setting the tone for the discussion, Aghanti Sunday, Chairman of AAN Osun, emphasized the daily realities for PWAs while calling for immediate actions to challenge the issue.
“In Nigeria, at least two persons with albinism die from skin cancer every month,” he revealed. “This is not just a health issue but a human rights issue. Protecting our skin is protecting our lives.”
He appealed to the Osun State Government to integrate routine cancer screenings, dermatological services, and sun-protective gear into the Osun Health Insurance Scheme (OHIS). He further advocated for the inclusion of anti-blue light glasses and low vision aids for children and adults within the albinism community—highlighting the high incidence of visual impairment among PWAs.
Aghanti also applauded the recent donation of 80 sunshades to school children with albinism by the Albino Foundation and Christoffel Blinden Mission, aimed at reducing UV-related eye damage. He called on more organizations to take similar initiatives.
The First Lady of Osun State, Chief (Mrs.) Titilola Adeleke, highlighted the government’s commitment to inclusive governance.
Mrs Adeleke, who was represented by Mrs. Oluwakemi Ojo, said the government of her husband is working towards ensuring that no one is left behind.
“Under the leadership of His Excellency, Governor Ademola Jackson Nurudeen Adeleke, we are working to ensure that no citizen, regardless of physical difference, is left behind,” she stated.
Mrs. Adeleke, pledged collaboration with relevant ministries and civil societies to enhance public awareness, improve healthcare access, and ensure the inclusion of persons with albinism in schools and workplaces.
“To all persons with albinism across Osun State: You are not invisible. You are seen, heard, and valued,” she said.
In his address, Hon. Adewumi Adeyemi Irekandu, member of the Osun State House of Assembly representing Obokun State Constituency, called for greater awareness and societal acceptance of persons with disabilities.
Reflecting on his own political journey, he acknowledged the strong support he received from the disability community.
“During my election in 2019, and even in my second term, their support has been unwavering and I will continue to work with them,” he said.
“I want to assure you that the government is for you, and we will not leave you behind.” he added.
Adding an academic and healthcare perspective, Professor (Mrs.) Olayinka of Obafemi Awolowo University stressed the need for accessible dermatological and visual care.
“People with albinism suffer from skin and vision problems. They don’t just need sunscreen; they also need glasses to help them see clearly,” she noted.
Sharing her personal experience, she lamented the scarcity of quality sunscreen across the Southwest. “Treating skin cancer is far more expensive than buying sunscreen,” she added.
Professor Olayinka also urged media platforms, private sector actors, and government institutions to promote public awareness, employment opportunities, and the broader inclusion of persons with albinism in society.
Environmental justice was also a key part of the dialogue, with calls for industries to reduce harmful chemical emissions and ensure transparency in product safety—linking environmental health to the broader well-being of vulnerable populations.
The event concluded with a united call to action for systemic change—across healthcare, education, employment, and legislation—ensuring that persons with albinism are protected, empowered, and embraced as equal citizens.
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